Comments on: UK Thyroid Information http://waters.me personal website of Simon Waters Tue, 31 Jan 2012 15:26:49 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Anna http://waters.me/uk-thyroid-information/comment-page-1/#comment-16855 Anna Tue, 31 Jan 2012 15:26:49 +0000 http://waters.me/?page_id=9#comment-16855 Hi Tony, know what you feel. I have exactly same symptoms as you and my last TSH test ( done a month ago) shows 3.33 - my stupid gp said that was nothing to worry about despite the fact that I saw my blood test results in his monitor and tsh result was in red! I have been trying for a baby for over 3 years - and cannot get pregnant. Except that - I had 2 early miscarriages in the past - probably caused by thyroid. Every single day I am sleepy and tiered , cannot concentrate . First time I noticed these symptoms 2 years ago but I did not realize that i could be cause of thyroid. At first I thought its anemia which I had 7 years ago ( was vegan for 13 years but I have been eating meat for about 4 years and my hemoglobin level was ok ) . I did jogging and work out for 2 hours every single day, was on law carb diet and guess what : i gained ;/ Currently dont go to the gym (i was very fitness person) because dont have enough strength - all i want is sleeping but eat very healthy small portions - 5 times a day , no fast foods etc 2-2.5 litres of water and cannot lost even 0.5 kg . I am sleepy and tiered few hours after waking up - even if I slept 8-9 hours. really dont know what to do . I have done some research and learned that when someone is trying for a baby should check tsh level - because during pregnancy must be under 2.0 to prevent of brain damage of the baby and others fetal defects . I am going to different gp next week and if nothing changed - I will have to change my medical practice ;/ and find someone who treats people and their symptoms not the numbers only ( was told that 0.33 is nothing ). Feel awful every day get worse and worse ;/ Hi Tony,

know what you feel.

I have exactly same symptoms as you and my last TSH test ( done a month ago) shows 3.33 – my stupid gp said that was nothing to worry about despite the fact that I saw my blood test results in his monitor and tsh result was in red!
I have been trying for a baby for over 3 years – and cannot get pregnant. Except that – I had 2 early miscarriages in the past – probably caused by thyroid.
Every single day I am sleepy and tiered , cannot concentrate . First time I noticed these symptoms 2 years ago but I did not realize that i could be cause of thyroid. At first I thought its anemia which I had 7 years ago ( was vegan for 13 years but I have been eating meat for about 4 years and my hemoglobin level was ok ) . I did jogging and work out for 2 hours every single day, was on law carb diet and guess what : i gained ;/
Currently dont go to the gym (i was very fitness person) because dont have enough strength – all i want is sleeping but eat very healthy small portions – 5 times a day , no fast foods etc 2-2.5 litres of water and cannot lost even 0.5 kg . I am sleepy and tiered few hours after waking up – even if I slept 8-9 hours. really dont know what to do . I have done some research and learned that when someone is trying for a baby should check tsh level – because during pregnancy must be under 2.0 to prevent of brain damage of the baby and others fetal defects .
I am going to different gp next week and if nothing changed – I will have to change my medical practice ;/ and find someone who treats people and their symptoms not the numbers only ( was told that 0.33 is nothing ).
Feel awful every day get worse and worse ;/

]]> By: Tony http://waters.me/uk-thyroid-information/comment-page-1/#comment-16319 Tony Fri, 20 Jan 2012 22:27:17 +0000 http://waters.me/?page_id=9#comment-16319 I have the below symtoms: Puffy skin under eyes. Loss of eyebrows Intolerance to cold Constipation Weight gain Sparse, coarse, dry hair Dry, shiny scaly smooth skin on shins and calves, total hair loss on shins and calves. Constant dry chapped lips. Confusion Depression, sudden freezing cold hands and feet. Fatigue -chronic fatigue Aches in joints, hands and feet Moodiness, unstable moods Difficulty concentrating Feeling sad Forgetfulness Loss of interest in activities, no motivation, too tired to work, depression, sex drive is zero, total loss of libido, only able to obtain an erection for short time. My stupid doctor tells me my thyroid tests are normal. Doctors are paid far too much money for the help they give. Can anyone recommend a doctor who knows how to diagnose this condition correctly? Thanks I have the below symtoms: Puffy skin under eyes.
Loss of eyebrows
Intolerance to cold
Constipation
Weight gain
Sparse, coarse, dry hair
Dry, shiny scaly smooth skin on shins and calves, total hair loss on shins and calves.
Constant dry chapped lips.
Confusion
Depression, sudden freezing cold hands and feet. Fatigue -chronic fatigue
Aches in joints, hands and feet
Moodiness, unstable moods
Difficulty concentrating
Feeling sad
Forgetfulness
Loss of interest in activities, no motivation, too tired to work, depression, sex drive is zero, total loss of libido, only able to obtain an erection for short time.
My stupid doctor tells me my thyroid tests are normal. Doctors are paid far too much money for the help they give. Can anyone recommend a doctor who knows how to diagnose this condition correctly? Thanks

]]> By: Judith Neill http://waters.me/uk-thyroid-information/comment-page-1/#comment-10712 Judith Neill Tue, 25 Oct 2011 16:48:36 +0000 http://waters.me/?page_id=9#comment-10712 I have had my thyroid removed because of papillary cancer & can honestly say that I never feel well, I am always tired, depressed, over weight & suffer a lot of muscle pain. My blood Reading always comes back fine. I take 200mg of thyroxine but still I suffer all the above & because my blood results are fine the GP & Consultant will not change the dosage. What can I do? I have had my thyroid removed because of papillary cancer & can honestly say that I never feel well, I am always tired, depressed, over weight & suffer a lot of muscle pain. My blood Reading always comes back fine. I take 200mg of thyroxine but still I suffer all the above & because my blood results are fine the GP & Consultant will not change the dosage. What can I do?

]]> By: Sonja Norfolk http://waters.me/uk-thyroid-information/comment-page-1/#comment-9508 Sonja Norfolk Sun, 02 Oct 2011 00:13:30 +0000 http://waters.me/?page_id=9#comment-9508 I have been an under active thyroid patient for 19 years now and have never been stable, is there something that is being missed in my treatment. I have all the classic signs and symptoms depression, hair falling out, brittle nails, dry skin, lack of concentration, pains in my muscles. I feel so down about this each month I get my blood checked and each month it is a change in my medication, when it is reduced I sink even lower, then the following month if it is increased I never get to catch back up before it is then put back down again. Any ideas out there?? Sonja I have been an under active thyroid patient for 19 years now and have never been stable, is there something that is being missed in my treatment. I have all the classic signs and symptoms depression, hair falling out, brittle nails, dry skin, lack of concentration, pains in my muscles.

I feel so down about this each month I get my blood checked and each month it is a change in my medication, when it is reduced I sink even lower, then the following month if it is increased I never get to catch back up before it is then put back down again.

Any ideas out there??

Sonja

]]> By: Esther Jacobs http://waters.me/uk-thyroid-information/comment-page-1/#comment-7677 Esther Jacobs Tue, 19 Jul 2011 23:29:16 +0000 http://waters.me/?page_id=9#comment-7677 Hi, I need urgently to find a top surgeon who specialises medullary carcinoma and Hurthle cell neoplasm and has done many thyroids operation. I need a second opinion fast, but cant find anybody preferably in Essex or London Many thanks for you help Hi,
I need urgently to find a top surgeon who specialises medullary carcinoma and Hurthle cell neoplasm and has done many thyroids operation.
I need a second opinion fast, but cant find anybody
preferably in Essex or London
Many thanks for you help

]]> By: Simon Waters http://waters.me/uk-thyroid-information/comment-page-1/#comment-5094 Simon Waters Sat, 14 May 2011 19:48:54 +0000 http://waters.me/?page_id=9#comment-5094 Thanks Carol, I believe the owner of NPTech retired and sold his business to a larger company in the same line of work. Couple of the thyroid groups (Thyroid UK, and TPA) have links to people doing private testing, but they don't have attractive enough pricing to make them stand-out in the same way NPTech did. In most cases the groups have been offered a discount which I dare say is available to anyone who asks for a discount. Thanks Carol, I believe the owner of NPTech retired and sold his business to a larger company in the same line of work.

Couple of the thyroid groups (Thyroid UK, and TPA) have links to people doing private testing, but they don’t have attractive enough pricing to make them stand-out in the same way NPTech did. In most cases the groups have been offered a discount which I dare say is available to anyone who asks for a discount.

]]> By: Carole Hughes http://waters.me/uk-thyroid-information/comment-page-1/#comment-5067 Carole Hughes Sat, 14 May 2011 11:47:21 +0000 http://waters.me/?page_id=9#comment-5067 Hi great site, Im enjoying mooching, but have to let you know I cant find NPTech site, and I just get some internet training company or whatever it is. Nothing to do with blood tests and thyroid. Have they gone out of business? Maybe an update is needed? Carole Hi
great site, Im enjoying mooching, but have to let you know I cant find NPTech site, and I just get some internet training company or whatever it is. Nothing to do with blood tests and thyroid. Have they gone out of business? Maybe an update is needed?

Carole

]]> By: Andy Bugden http://waters.me/uk-thyroid-information/comment-page-1/#comment-4319 Andy Bugden Thu, 14 Apr 2011 12:26:53 +0000 http://waters.me/?page_id=9#comment-4319 i suffer from seizures or epilepsy. my eeg scans are not conclusive. I was speaking to a Doctor friend of mine and he told me that eegs are 99.9% accurate and told me it is the Thyroid. I did a bit of research and found a link with coeliacs and thyroid disease. Coeliacs disease is very hard to diagnose. up to 2% of people have it and most do not know it. I am one of 35000 who get also Dermatitis Herperiformidis(skin rash), so it was eventually diagnosed. for the other 99.9% of people the only way to diagnose it is by endiscopy. Moral of the story is that before you take the pill check to see if you are allergic to gluten. if you are a woman its is vitally important. A friend of mine in portugal lost her baby because she had abnormal Thyroxine levels. She had the surgery to remove it and during the subsequent pregnancy everything was fine. My wife took the pill, and during her two pregnancies she had to have her Thyroxine raised. Be aware also that if someone in your family has problems with the Thyroid it is important to get yourself tested since there is a genetic link. I hope this is helpful i suffer from seizures or epilepsy. my eeg scans are not conclusive. I was speaking to a Doctor friend of mine and he told me that eegs are 99.9% accurate and told me it is the Thyroid. I did a bit of research and found a link with coeliacs and thyroid disease. Coeliacs disease is very hard to diagnose. up to 2% of people have it and most do not know it. I am one of 35000 who get also Dermatitis Herperiformidis(skin rash), so it was eventually diagnosed. for the other 99.9% of people the only way to diagnose it is by endiscopy. Moral of the story is that before you take the pill check to see if you are allergic to gluten. if you are a woman its is vitally important. A friend of mine in portugal lost her baby because she had abnormal Thyroxine levels. She had the surgery to remove it and during the subsequent pregnancy everything was fine. My wife took the pill, and during her two pregnancies she had to have her Thyroxine raised. Be aware also that if someone in your family has problems with the Thyroid it is important to get yourself tested since there is a genetic link.

I hope this is helpful

]]> By: Sheila http://waters.me/uk-thyroid-information/comment-page-1/#comment-3986 Sheila Sun, 27 Mar 2011 09:09:55 +0000 http://waters.me/?page_id=9#comment-3986 The Charity, Thyroid Patient Advocacy www.tpa-uk.org.uk is in the process of creating a World Register of Counterexamples to levothyroxine-only (T4) therapy. This short survey is applicable only to those who continued to suffer symptoms on levothyroxine (T4)-only therapy, and who found those symptoms disappeared once they were started on a T3 hormone containing product , whether synthetic or natural thyroid extract. The objective of this Register of Counterexamples to T4-only therapy is to draw to the attention of those responsible authorities throughout the world, the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism. If you fit this category, please will you complete the 3 questions with either 'YES', 'NO' or N/A here http://www.tpa-uk.org.uk/register_of_counterexamples.php All responses will be collated online, and your email address (if you provide one) will be used ONLY to contact you at a later date should this be becomes necessary. Sheila Thyroid Patient Advocate www.tpa-uk.org.uk The Charity, Thyroid Patient Advocacy http://www.tpa-uk.org.uk is in the process of creating a World Register of Counterexamples to levothyroxine-only (T4) therapy. This short survey is applicable only to those who continued to suffer symptoms on levothyroxine (T4)-only therapy, and who found those symptoms disappeared once they were started on a T3 hormone containing product , whether synthetic or natural thyroid extract.

The objective of this Register of Counterexamples to T4-only therapy is to draw to the attention of those responsible authorities throughout the world, the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism.

If you fit this category, please will you complete the 3 questions with either ‘YES’, ‘NO’ or N/A here http://www.tpa-uk.org.uk/register_of_counterexamples.php All responses will be collated online, and your email address (if you provide one) will be used ONLY to contact you at a later date should this be becomes necessary.

Sheila
Thyroid Patient Advocate
http://www.tpa-uk.org.uk

]]> By: Mia http://waters.me/uk-thyroid-information/comment-page-1/#comment-1230 Mia Fri, 17 Dec 2010 17:48:06 +0000 http://waters.me/?page_id=9#comment-1230 I have recently been diagnosed with anemia and low thyroid function, I felt so ill a month ago on every level, and have done for over 2 years, so I began taking chlorella and spirulina, sea kelp and lecithin and for the iron a natural iron water called spa tone the pharmacist said this was better than the tablet version I was being offered as it had no side effects what so ever and is natural, and within a month my hair stopped falling out, my depression and many many other symptoms lifted, and I feel well there is no more chronic fatigue and I feel so much better, however I was shocked to find out that the blood tests this week (1 month later) showed that accordingly I am worse than I was a month ago, yet I feel alive and well and I mean really well compared with how I felt a month ago or actually have felt over the past 2 years or so, I am not a person who takes "conventional" medicine if I can help it, so I was really surprised that my blood results showed such terrible results despite that I am feeling on top of the world. I have to say that I am really confused as is the GP who is trying his best to get his head around "natural" medicine. So my question is how can I feel so well when the results show that I have "worsened", and what should I do - listen to my body or take notice of the blood results that latter would please my GP no end if I would just take the levothyroxine and the Ferrous Gluconate which is for the iron or lack of iron in my blood. This has really got me curious and I am now looking for information, views and explanations from specialists and other medical people who can assist with this now bizarre experience. So if there is anyone who wishes to give their views on this, then I am open and willing to listen, in the meantime I am going to continue to take the "natural" stuff and see what happens. I have recently been diagnosed with anemia and low thyroid function, I felt so ill a month ago on every level, and have done for over 2 years, so I began taking chlorella and spirulina, sea kelp and lecithin and for the iron a natural iron water called spa tone the pharmacist said this was better than the tablet version I was being offered as it had no side effects what so ever and is natural, and within a month my hair stopped falling out, my depression and many many other symptoms lifted, and I feel well there is no more chronic fatigue and I feel so much better, however I was shocked to find out that the blood tests this week (1 month later) showed that accordingly I am worse than I was a month ago, yet I feel alive and well and I mean really well compared with how I felt a month ago or actually have felt over the past 2 years or so, I am not a person who takes “conventional” medicine if I can help it, so I was really surprised that my blood results showed such terrible results despite that I am feeling on top of the world. I have to say that I am really confused as is the GP who is trying his best to get his head around “natural” medicine. So my question is how can I feel so well when the results show that I have “worsened”, and what should I do – listen to my body or take notice of the blood results that latter would please my GP no end if I would just take the levothyroxine and the Ferrous Gluconate which is for the iron or lack of iron in my blood.

This has really got me curious and I am now looking for information, views and explanations from specialists and other medical people who can assist with this now bizarre experience.

So if there is anyone who wishes to give their views on this, then I am open and willing to listen, in the meantime I am going to continue to take the “natural” stuff and see what happens.

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