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	<title>Comments on: UK Thyroid Information</title>
	<atom:link href="http://waters.me/uk-thyroid-information/feed/" rel="self" type="application/rss+xml" />
	<link>http://waters.me</link>
	<description>personal website of Simon Waters</description>
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		<title>By: Simon Waters</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-23153</link>
		<dc:creator>Simon Waters</dc:creator>
		<pubDate>Thu, 17 May 2012 17:46:25 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-23153</guid>
		<description>Both the British Thyroid Foundation and UK Thyroid operate networks of volunteers to have a rep local to you with local information.

The BTF reps probably won&#039;t directly recommend someone, but they will be able to share stories they have heard, and advise on how the system work - which is often the hard bit.

In the first place I would discuss with your GP, as they again often have informed views about local consultants.

If you find no joy, get back to me, as I have family close to you several members of which have thyroid issues.</description>
		<content:encoded><![CDATA[<p>Both the British Thyroid Foundation and UK Thyroid operate networks of volunteers to have a rep local to you with local information.</p>
<p>The BTF reps probably won&#8217;t directly recommend someone, but they will be able to share stories they have heard, and advise on how the system work &#8211; which is often the hard bit.</p>
<p>In the first place I would discuss with your GP, as they again often have informed views about local consultants.</p>
<p>If you find no joy, get back to me, as I have family close to you several members of which have thyroid issues.</p>
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		<title>By: sandra</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-23151</link>
		<dc:creator>sandra</dc:creator>
		<pubDate>Thu, 17 May 2012 16:59:06 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-23151</guid>
		<description>Hi Simon can  you recommend a good, sympathetic endocrinologist for a second opinion?My daughter age 20 has been suffering from hashimotos thyroiditis for several years now and is still not well. I need someone who is willing to check her completely. I live in Greater London/ Bucks/ Herts borders but am happy to travel anywhere. Thanks.</description>
		<content:encoded><![CDATA[<p>Hi Simon can  you recommend a good, sympathetic endocrinologist for a second opinion?My daughter age 20 has been suffering from hashimotos thyroiditis for several years now and is still not well. I need someone who is willing to check her completely. I live in Greater London/ Bucks/ Herts borders but am happy to travel anywhere. Thanks.</p>
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		<title>By: Denise Fleming</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-23123</link>
		<dc:creator>Denise Fleming</dc:creator>
		<pubDate>Sun, 06 May 2012 17:26:25 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-23123</guid>
		<description>Dear Simon:
As a thyroid advocate and person of influence, I would like to ask you to read this thyroid advocacy petition and to share it with your members, asking people to sign.  Change is needed and we need more signatures!   Millions of people are suffering from undiagnosed thyroid conditions because the current practice of doctors failing to stay current in thyroid testing.  The petition will be sent to the American College of Endocrinology and the American Board of Internal Medicine as well as four other well-known endocrinology organizations.  Sixteen doctors later in 3 different states, I finally received a diagnosis. And there are millions who share my story.  A crying shame!

Thank you for sharing this information.   Facebook is a powerful communication tool, too!

Petition link is here:
http://www.change.org/petitions/board-certified-endocrinologists-should-be-proficient-in-and-mandated-to-be-current-on-thyroid-disorders-treatment?utm_medium=facebook&amp;utm_source=share_petition&amp;utm_term=share_page_mobile

Sincerely,
Denise Fleming</description>
		<content:encoded><![CDATA[<p>Dear Simon:<br />
As a thyroid advocate and person of influence, I would like to ask you to read this thyroid advocacy petition and to share it with your members, asking people to sign.  Change is needed and we need more signatures!   Millions of people are suffering from undiagnosed thyroid conditions because the current practice of doctors failing to stay current in thyroid testing.  The petition will be sent to the American College of Endocrinology and the American Board of Internal Medicine as well as four other well-known endocrinology organizations.  Sixteen doctors later in 3 different states, I finally received a diagnosis. And there are millions who share my story.  A crying shame!</p>
<p>Thank you for sharing this information.   Facebook is a powerful communication tool, too!</p>
<p>Petition link is here:<br />
<a href="http://www.change.org/petitions/board-certified-endocrinologists-should-be-proficient-in-and-mandated-to-be-current-on-thyroid-disorders-treatment?utm_medium=facebook&#038;utm_source=share_petition&#038;utm_term=share_page_mobile" rel="nofollow">http://www.change.org/petitions/board-certified-endocrinologists-should-be-proficient-in-and-mandated-to-be-current-on-thyroid-disorders-treatment?utm_medium=facebook&#038;utm_source=share_petition&#038;utm_term=share_page_mobile</a></p>
<p>Sincerely,<br />
Denise Fleming</p>
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		<title>By: Simon Waters</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-19142</link>
		<dc:creator>Simon Waters</dc:creator>
		<pubDate>Sat, 10 Mar 2012 18:34:46 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-19142</guid>
		<description>Hi Mag,

people receiving thyroxine and insulin in England are generally entitled to a prescription exemption certificate. This exempts one from paying for prescriptions (but not dental charges).

You need to complete an FP92A form, you can usually get it from your doctor&#039;s office.

More complete exemptions are available on other grounds including age and low income.

http://www.patient.co.uk/health/Free-or-Reduced-Cost-Prescriptions.htm

I don&#039;t think the cost issue concerns doctors on this question since they aren&#039;t paying. In my experience doctors often don&#039;t know if a patient has taken advantages of the exemptions they are entitled to and often don&#039;t mention that the exemption is available. Pharmacies are usually quite good at picking this one up, since most are surprised if they have to charge for a prescription containing thyroxine.</description>
		<content:encoded><![CDATA[<p>Hi Mag,</p>
<p>people receiving thyroxine and insulin in England are generally entitled to a prescription exemption certificate. This exempts one from paying for prescriptions (but not dental charges).</p>
<p>You need to complete an FP92A form, you can usually get it from your doctor&#8217;s office.</p>
<p>More complete exemptions are available on other grounds including age and low income.</p>
<p><a href="http://www.patient.co.uk/health/Free-or-Reduced-Cost-Prescriptions.htm" rel="nofollow">http://www.patient.co.uk/health/Free-or-Reduced-Cost-Prescriptions.htm</a></p>
<p>I don&#8217;t think the cost issue concerns doctors on this question since they aren&#8217;t paying. In my experience doctors often don&#8217;t know if a patient has taken advantages of the exemptions they are entitled to and often don&#8217;t mention that the exemption is available. Pharmacies are usually quite good at picking this one up, since most are surprised if they have to charge for a prescription containing thyroxine.</p>
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		<title>By: mag</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-19121</link>
		<dc:creator>mag</dc:creator>
		<pubDate>Sat, 10 Mar 2012 16:07:56 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-19121</guid>
		<description>I also think that it depends on your individual PCT in the UK. I believe thyroxine, insulin are free of charge, even for people who normally pay for prescriptions. Could it be anything to do with cost?</description>
		<content:encoded><![CDATA[<p>I also think that it depends on your individual PCT in the UK. I believe thyroxine, insulin are free of charge, even for people who normally pay for prescriptions. Could it be anything to do with cost?</p>
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		<title>By: mag</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-19120</link>
		<dc:creator>mag</dc:creator>
		<pubDate>Sat, 10 Mar 2012 16:05:50 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-19120</guid>
		<description>I have gained about 3 stones in weight over the past 10 years. I have tried to eat more sensibly, but all to no avail. I had blood tests done, as I was suspecting that my thyroid was underactive. My TSH came back as 4.5 and I was told it was fine. Reading stuff online it should be less than 3.5! I feel that tacking the thyroid problem is the only way to lose the excess weight I&#039;ve gained.</description>
		<content:encoded><![CDATA[<p>I have gained about 3 stones in weight over the past 10 years. I have tried to eat more sensibly, but all to no avail. I had blood tests done, as I was suspecting that my thyroid was underactive. My TSH came back as 4.5 and I was told it was fine. Reading stuff online it should be less than 3.5! I feel that tacking the thyroid problem is the only way to lose the excess weight I&#8217;ve gained.</p>
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		<title>By: Sweeta</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-17824</link>
		<dc:creator>Sweeta</dc:creator>
		<pubDate>Fri, 24 Feb 2012 00:19:48 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-17824</guid>
		<description>Hi,
I suffered from hypothyroidism in 2009 and after taking thyroxine, my tsh levels were normal I.e. 2.3. So I stopped thyroxine. We were trying for a baby in 2011 and did a thyroid test just to be safe and it came as 3.5. Gp mentioned no need to worry. I conceived in oct 2011 but unfortunately miscarried in the 10th week after which I got my test results with Tsh levels as 6.53 ( this was when I was 9 weeks pregnant)
One NHS doctor told me that I should be on thyroxine before trying for another baby but my GP refused to revommend a thyroxine dose and asked to do a test again in December 2011. Tsh level this time 4.5 so Gp mentioned no need of thyroxine! Now we want to try for another baby but I am scared as I am not on thyroxine. What should I do? Please advise.</description>
		<content:encoded><![CDATA[<p>Hi,<br />
I suffered from hypothyroidism in 2009 and after taking thyroxine, my tsh levels were normal I.e. 2.3. So I stopped thyroxine. We were trying for a baby in 2011 and did a thyroid test just to be safe and it came as 3.5. Gp mentioned no need to worry. I conceived in oct 2011 but unfortunately miscarried in the 10th week after which I got my test results with Tsh levels as 6.53 ( this was when I was 9 weeks pregnant)<br />
One NHS doctor told me that I should be on thyroxine before trying for another baby but my GP refused to revommend a thyroxine dose and asked to do a test again in December 2011. Tsh level this time 4.5 so Gp mentioned no need of thyroxine! Now we want to try for another baby but I am scared as I am not on thyroxine. What should I do? Please advise.</p>
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		<title>By: Hopeful</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-17686</link>
		<dc:creator>Hopeful</dc:creator>
		<pubDate>Mon, 20 Feb 2012 13:18:32 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-17686</guid>
		<description>Quite useful links and information Simon. I find labtestsonline to be the best source for all the NHS tests etc. For real time forum discussions, we have a support community at http://www.thyroidhelp.org

Thanks</description>
		<content:encoded><![CDATA[<p>Quite useful links and information Simon. I find labtestsonline to be the best source for all the NHS tests etc. For real time forum discussions, we have a support community at <a href="http://www.thyroidhelp.org" rel="nofollow">http://www.thyroidhelp.org</a></p>
<p>Thanks</p>
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		<title>By: Anna</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-16855</link>
		<dc:creator>Anna</dc:creator>
		<pubDate>Tue, 31 Jan 2012 15:26:49 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-16855</guid>
		<description>Hi Tony,

know what you feel.

I have exactly same symptoms as you and my last TSH test  ( done a month ago) shows 3.33 - my stupid gp said that was nothing  to worry about despite the fact that I saw my blood test results in his monitor and tsh result was in red!
I have been trying for a baby for over 3 years - and cannot get pregnant.  Except that - I had 2 early miscarriages in the past - probably caused by thyroid. 
Every single day I am sleepy and tiered , cannot concentrate . First time I noticed these symptoms 2 years ago but I did not realize that i could be cause of thyroid.  At first I thought its anemia which I had 7 years ago ( was vegan for 13 years but I have been eating meat for about 4 years and my hemoglobin level was ok ) .  I  did jogging and work out for  2 hours every single day, was on law carb diet and guess what : i gained ;/ 
Currently dont go to the gym (i was very fitness person) because dont have enough strength - all i want is sleeping but eat very healthy small portions - 5 times a day , no fast foods etc  2-2.5 litres of water  and  cannot lost even 0.5 kg .  I am sleepy and tiered few hours after waking up - even if I slept 8-9 hours.  really dont know what to do .  I have done some research and learned that when someone is trying for a baby should check  tsh level - because during pregnancy must be under 2.0 to prevent of brain damage of the baby  and others fetal defects .  
I am going to different  gp next week and  if nothing changed - I will have to change my medical practice ;/ and find someone who treats people and their symptoms not the numbers only ( was told that 0.33 is nothing ).
Feel awful every day get worse and worse ;/</description>
		<content:encoded><![CDATA[<p>Hi Tony,</p>
<p>know what you feel.</p>
<p>I have exactly same symptoms as you and my last TSH test  ( done a month ago) shows 3.33 &#8211; my stupid gp said that was nothing  to worry about despite the fact that I saw my blood test results in his monitor and tsh result was in red!<br />
I have been trying for a baby for over 3 years &#8211; and cannot get pregnant.  Except that &#8211; I had 2 early miscarriages in the past &#8211; probably caused by thyroid.<br />
Every single day I am sleepy and tiered , cannot concentrate . First time I noticed these symptoms 2 years ago but I did not realize that i could be cause of thyroid.  At first I thought its anemia which I had 7 years ago ( was vegan for 13 years but I have been eating meat for about 4 years and my hemoglobin level was ok ) .  I  did jogging and work out for  2 hours every single day, was on law carb diet and guess what : i gained ;/<br />
Currently dont go to the gym (i was very fitness person) because dont have enough strength &#8211; all i want is sleeping but eat very healthy small portions &#8211; 5 times a day , no fast foods etc  2-2.5 litres of water  and  cannot lost even 0.5 kg .  I am sleepy and tiered few hours after waking up &#8211; even if I slept 8-9 hours.  really dont know what to do .  I have done some research and learned that when someone is trying for a baby should check  tsh level &#8211; because during pregnancy must be under 2.0 to prevent of brain damage of the baby  and others fetal defects .<br />
I am going to different  gp next week and  if nothing changed &#8211; I will have to change my medical practice ;/ and find someone who treats people and their symptoms not the numbers only ( was told that 0.33 is nothing ).<br />
Feel awful every day get worse and worse ;/</p>
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		<title>By: Tony</title>
		<link>http://waters.me/uk-thyroid-information/comment-page-1/#comment-16319</link>
		<dc:creator>Tony</dc:creator>
		<pubDate>Fri, 20 Jan 2012 22:27:17 +0000</pubDate>
		<guid isPermaLink="false">http://waters.me/?page_id=9#comment-16319</guid>
		<description>I have the below symtoms: Puffy skin under eyes.
Loss of eyebrows
Intolerance to cold
Constipation
Weight gain
Sparse, coarse, dry hair
Dry, shiny scaly smooth skin on shins and calves, total hair loss on shins and calves. 
Constant dry chapped lips.
Confusion
Depression, sudden freezing  cold hands and feet. Fatigue -chronic fatigue
Aches in joints, hands and feet
Moodiness, unstable moods
Difficulty concentrating
Feeling sad
Forgetfulness
Loss of interest in activities, no motivation, too tired to work, depression, sex drive is zero, total loss of libido, only able to obtain an erection for short time. 
My stupid doctor tells me my thyroid tests are normal.   Doctors are paid far too much money for the help they give.  Can anyone recommend a doctor who knows how to diagnose this condition correctly? Thanks</description>
		<content:encoded><![CDATA[<p>I have the below symtoms: Puffy skin under eyes.<br />
Loss of eyebrows<br />
Intolerance to cold<br />
Constipation<br />
Weight gain<br />
Sparse, coarse, dry hair<br />
Dry, shiny scaly smooth skin on shins and calves, total hair loss on shins and calves.<br />
Constant dry chapped lips.<br />
Confusion<br />
Depression, sudden freezing  cold hands and feet. Fatigue -chronic fatigue<br />
Aches in joints, hands and feet<br />
Moodiness, unstable moods<br />
Difficulty concentrating<br />
Feeling sad<br />
Forgetfulness<br />
Loss of interest in activities, no motivation, too tired to work, depression, sex drive is zero, total loss of libido, only able to obtain an erection for short time.<br />
My stupid doctor tells me my thyroid tests are normal.   Doctors are paid far too much money for the help they give.  Can anyone recommend a doctor who knows how to diagnose this condition correctly? Thanks</p>
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